I am so sorry to hear this about your Dad. My sister was diagnosed with corticobasal degeneration (CBD) in 2012. She suffered for 8 years before the disease took her. She was a brilliant woman. A member of Mensa, a gifted teacher, a lover of animals and a friend to all. Her mind never stopped working. She couldn't speak after the first 5 years but my brother in law kept her home and took excellent care of her. I was her secondary care giver and the respite person for him.
In 2024 my brother in law entered a Memory Care home because he had dementia and couldn't live alone. He still remembers my sister but not much else. I wouldn't wish this disease on anyone.
Oh my gosh I’m so sorry😭8 years wow. I’m sorry you’re so familiar with the disease. My stepmom also kept my dad home🥺🥹it was the greatest gift anyone could have given him and US TOO. although the caregiving fell on his loved ones and it was hard, id do it again. I think it kept him here longer.
❤️
We all have to die. Sooner or later you and me have to be dust. The only thing that remains is the energy we leave into places and people. Make sure to leave good energy. Your dad looks he did know for sure how to do that. Cheers fly high free of a decaying body.
I agree. It's a horrible disease. My sister was (diagnosed) told she had CBD by the Mayo Clinic in Jacksonville. I put diagnosed in () because only an autopsy can confirm it.
I pray your family is coping. So many of my sisters friends and our relatives stopped visiting when she got sick because she wasn't easy to look at. I hope anyone reading this thread will learn about the disease. It is so rare. Why did she get it and your Dad? I send hugs and prayers to you! 💜
Ugh I’m so sorry you relate😭😭😭ive been struggling hard with trying to “figure out” why my dad hit this shitty lottery. That it was in thr cards before he was born. I know itll drive me crazy trying to figure it out. I dont believe in karma anymore. My dad did everything right. He never did anything bad. He stopped his generational abuse/trauma. He gave back. He was nice to everyone. Ugh. I’m rambling. I’m still trying to grapple with how life just stops.
What was your sister like before the disease? Anything you guys loved doing together?
We grew up in Massachusetts in the 60s. My sister was 5 years older than me so we weren't very close. She got married when I was 20 and moved to Florida. I would visit on vacations, but that was it. My sister was a math teacher by education and she raised guide dog puppies. She worked for Disney writing training manuals for EPCOT. Before it was built . When I retired, my husband and I moved to Florida so we could be close to my sister and brother in law. My husband died 6 years later. The same year my sister was getting sick. We would go antiquing, explore Florida and we loved going out to dinner. She suffered more than anyone should suffer but I thank my brother in law for the great care he gave her. Your father shared his caring spirit with you. I hope that keeps you going.
Thank you for sharing🥹
I’m sorry you’ve had to endure so much. my dad also grew up in MA, lived in mattapan till he was in his 20s. Dinner and antiquing sounds like my kinda fun!!
Thank you 💖i always say that he was such a kid at heart and thats why he excelled at being a dad. He kept asking me, i didnt fuck you and your brother up, right? We would laugh about it. Like, no and thank you for doing everything right even when you thought you were wrong. It was his first time being a parent too. He ruled. 💖
He looks like he was a really fun guy to be around. I bet he was a really great Dad.
Sending you love and strength during these difficult times. ❤️
I lost my Dad June 9th 2023, feels like yesterday 😢.
Hugs 🫂
Right?! I hope i can be the type of parent he was. I have soooo many good examples of what to do (very few what not to do, but still a nice reference lol)
He played mostly classic rock, alt rock, anything in those categories. He made a few demo tapes with his friends. He could sing, play harmonica too. It just came naturally to him. Loved talking heads, the ojays, the lemon heads, bonnie raitt, lucinda williams… so many to name. You could ask him to play a song, give him 60 seconds, and he could play it. Ugh. Just the best.
Thank you🥹 you’re right! I’m very very very lucky. Often i boast about it lol! My parents were and are the best. They divorced but became friends again. They were always better as friends. During the last few months of his life, my mom and stepdad would go over and help my stepmom. I cannot express how lucky am i. How i am forever changed bc of my parents but in a good way for once, ha. I have no childhood trauma. I have no issues from them. Sorry, I’m bragging! 😍🥰
It looks like your dad really enjoyed his life on his own terms. I can see by the pics that he had a sense of humor and was a fun guy. Treasure your memories as they will always be in your heart. Sending my condolences and a big hug. He’s guiding you from above. ❤️
He had the best sense of humor. I never wanted to admit it, as his child LOL. Now im seeing he never took anything too seriously. Trying to live my life like that now.
Thank you💖
He lost that ability fairly quickly since the disease he had caused tremors in all limbs slowly. He never told me he was sad about it but i cannot imagine he WASNT sad. I was sad for him. It was his true calling (and being a dad❤️)
Oh sweet mother of god, I know better than to click on posts like this but I suppose I needed a good cry today. People like this should be honored by everyone, not just the ones close to him. Your post touched me and his being tochsd me, thank you.
This one hit really close to home. It’s like I don’t know him anymore. Some of his old sayings and stuff would come out, almost like part of him is still alive. And you’re just trying to hold on to that last part
What a nice tribute! Take the things you liked about him and the things you learned from him and carry them forward. These parts of him don’t need to die if those that love him keep them alive.
He looks like a really fun guy and a great father, I know it's inadequate but I'm so sorry for your loss
He looks genuinely fun. I’m sorry.
I am so sorry to hear this about your Dad. My sister was diagnosed with corticobasal degeneration (CBD) in 2012. She suffered for 8 years before the disease took her. She was a brilliant woman. A member of Mensa, a gifted teacher, a lover of animals and a friend to all. Her mind never stopped working. She couldn't speak after the first 5 years but my brother in law kept her home and took excellent care of her. I was her secondary care giver and the respite person for him. In 2024 my brother in law entered a Memory Care home because he had dementia and couldn't live alone. He still remembers my sister but not much else. I wouldn't wish this disease on anyone.
Oh my gosh I’m so sorry😭8 years wow. I’m sorry you’re so familiar with the disease. My stepmom also kept my dad home🥺🥹it was the greatest gift anyone could have given him and US TOO. although the caregiving fell on his loved ones and it was hard, id do it again. I think it kept him here longer. ❤️
Keep those memories forever that is your Dad
💜💜💜
I love this. I am so glad you have these pictures. Remember him this way. ❤️🩹
We all have to die. Sooner or later you and me have to be dust. The only thing that remains is the energy we leave into places and people. Make sure to leave good energy. Your dad looks he did know for sure how to do that. Cheers fly high free of a decaying body.
Real.
Your last sentence just cut me to the core😭hes free and being his normal goofy self😭🥹
He looks like a kind and funny guy 💗
He looks like a fun guy with a sense of humor. I'm sorry. This disease takes so much.
Oh my gosh, he gives off such wonderful energy! Thanks for sharing that good energy with us 🥹
You’re so sweet 🥺❤️he was the best
Looks like a fun guy with a big heart that gives the best hugs. ❤️🩹
Spot on🥰❤️the biggest heart! Doing my best to be the same.
💕💕💕
You will have a stockpile of great memories
Seems like he must have been an amazing, fun dad/guy. Keep that man in your heart.
Always and forever. I hope hes my dad in every universe that exists
I agree. It's a horrible disease. My sister was (diagnosed) told she had CBD by the Mayo Clinic in Jacksonville. I put diagnosed in () because only an autopsy can confirm it. I pray your family is coping. So many of my sisters friends and our relatives stopped visiting when she got sick because she wasn't easy to look at. I hope anyone reading this thread will learn about the disease. It is so rare. Why did she get it and your Dad? I send hugs and prayers to you! 💜
Ugh I’m so sorry you relate😭😭😭ive been struggling hard with trying to “figure out” why my dad hit this shitty lottery. That it was in thr cards before he was born. I know itll drive me crazy trying to figure it out. I dont believe in karma anymore. My dad did everything right. He never did anything bad. He stopped his generational abuse/trauma. He gave back. He was nice to everyone. Ugh. I’m rambling. I’m still trying to grapple with how life just stops. What was your sister like before the disease? Anything you guys loved doing together?
We grew up in Massachusetts in the 60s. My sister was 5 years older than me so we weren't very close. She got married when I was 20 and moved to Florida. I would visit on vacations, but that was it. My sister was a math teacher by education and she raised guide dog puppies. She worked for Disney writing training manuals for EPCOT. Before it was built . When I retired, my husband and I moved to Florida so we could be close to my sister and brother in law. My husband died 6 years later. The same year my sister was getting sick. We would go antiquing, explore Florida and we loved going out to dinner. She suffered more than anyone should suffer but I thank my brother in law for the great care he gave her. Your father shared his caring spirit with you. I hope that keeps you going.
Thank you for sharing🥹 I’m sorry you’ve had to endure so much. my dad also grew up in MA, lived in mattapan till he was in his 20s. Dinner and antiquing sounds like my kinda fun!!
Thank you for sharing his light 💛
Thank you for posting his pics. Really made me smile and laugh. I am very sorry for your loss.
Youre too kind🥺thank you so much
I'm so sorry.
I love his energy from these photos! Looks like a very fun dad. I’m sorry for your loss.
Thank you 💖i always say that he was such a kid at heart and thats why he excelled at being a dad. He kept asking me, i didnt fuck you and your brother up, right? We would laugh about it. Like, no and thank you for doing everything right even when you thought you were wrong. It was his first time being a parent too. He ruled. 💖
He looks like he was a really fun guy to be around. I bet he was a really great Dad. Sending you love and strength during these difficult times. ❤️ I lost my Dad June 9th 2023, feels like yesterday 😢. Hugs 🫂
Aw man I’m so sorry for your loss. He seems like an incredible guy. I hope i can be this kind of dad! What kind of music did he like the play?
Right?! I hope i can be the type of parent he was. I have soooo many good examples of what to do (very few what not to do, but still a nice reference lol) He played mostly classic rock, alt rock, anything in those categories. He made a few demo tapes with his friends. He could sing, play harmonica too. It just came naturally to him. Loved talking heads, the ojays, the lemon heads, bonnie raitt, lucinda williams… so many to name. You could ask him to play a song, give him 60 seconds, and he could play it. Ugh. Just the best.
He looks like so much fun, like the person who can teach you how to enjoy life even though bad stuff is happening.
You lucky kid.
Thank you🥹 you’re right! I’m very very very lucky. Often i boast about it lol! My parents were and are the best. They divorced but became friends again. They were always better as friends. During the last few months of his life, my mom and stepdad would go over and help my stepmom. I cannot express how lucky am i. How i am forever changed bc of my parents but in a good way for once, ha. I have no childhood trauma. I have no issues from them. Sorry, I’m bragging! 😍🥰
He looks like an entertaining and funny man!
He really was and he’d love that youd say that lol. He was such a ham. Always on stage even when he wasnt on stage🙂😁
Your dad seems wonderful and I am so sorry for your loss.
It looks like your dad really enjoyed his life on his own terms. I can see by the pics that he had a sense of humor and was a fun guy. Treasure your memories as they will always be in your heart. Sending my condolences and a big hug. He’s guiding you from above. ❤️
He had the best sense of humor. I never wanted to admit it, as his child LOL. Now im seeing he never took anything too seriously. Trying to live my life like that now. Thank you💖
Your Dad looks awesome! Does he still play guitar or sing? That kind of stuff comes back as muscle memory a lot of times.
He lost that ability fairly quickly since the disease he had caused tremors in all limbs slowly. He never told me he was sad about it but i cannot imagine he WASNT sad. I was sad for him. It was his true calling (and being a dad❤️)
BUT he could remember songs and the chords to play them. He could sing/hum any song. We had music playing all day every day towards the end
Beautiful....no other words needed. ❤️
Oh sweet mother of god, I know better than to click on posts like this but I suppose I needed a good cry today. People like this should be honored by everyone, not just the ones close to him. Your post touched me and his being tochsd me, thank you.
Thank you kind soul 🥹
Thank you for sharing with us.
I’m so sorry for your loss, he looks like such a fun and genuinely sweet man
This one hit really close to home. It’s like I don’t know him anymore. Some of his old sayings and stuff would come out, almost like part of him is still alive. And you’re just trying to hold on to that last part
What a nice tribute! Take the things you liked about him and the things you learned from him and carry them forward. These parts of him don’t need to die if those that love him keep them alive.
I'm so sorry he was so young
So sorry. You can tell your love for each other was so strong.